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The internet's Ice Bucket Challenge funded a medical discovery

The donations triggered by those viral videos helped discover a gene associated with ALS.
Jon Fingas, @jonfingas
July 27, 2016
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Reuters/Dan Riedlhuber/File Photo

Internet sensations can do more than just trigger fond memories or confusion... sometimes, they might just lead to a vital cure. Some of the $100 million-plus in donations from the Ice Bucket Challenge (the viral video-fueled awareness campaign for ALS, aka Lou Gehrig's Disease) fully funded Project MinE, a medical research effort that just identified a gene linked with some ALS cases. Yes, that clip you shared with your Facebook friends may have given scientists the cash they needed to finish their work -- in this case, sequencing the genomes of 15,000 people with ALS to help pinpoint relevant genes.

It's important not to oversell the impact of the Ice Bucket Challenge. Some of those donations came from ALS Association state chapters, for one thing. Moreover, there was a real concern that the original awareness message got lost in the shuffle. While there's no question that the fundraising was wildly successful, there were likely some who didn't realize that it was connected to ALS at all -- the internet's tendency to dilute information might have worked against the campaign. On the balance, though, the discovery stands as proof that the buzz created by social networks can accomplish great things.

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